Hugo was born in January 2009 with CHARGE syndrome.
His medical conditions are:
#Tetralogy of Fallot with Pulmonary atresia - surgically repaired on 6/4/09
#Severely visually impaired - bilateral colombomas and left microphthalmia (left side of his face smaller than right)
#Hearing impaired
#Brain stem hyperplasia -
Dandy-walker variant
#Single Right Kidney
#Bulbar palsy
#Right sided facial palsy
#Left sided vocal cord palsy
#Gastrostomy fed
#Unsafe swallow, requiring regular suctioning - queried aspiration risk
#Tongue tie
#Developmental delay
#Gastro-oesophageal reflux
#Hyperparathyroidism
#Genital abnormalities